The steps forward - Alice is no longer on caffeine and it hasn't affected her at all, which is great. She doesn't miss it at all for the stimulation. We also lost her NG tube so she is 100% on bottle and breast for feeding. And the feeds are on demand. She's going about 3 1/2 hours between feeds. She's looking great and gaining weight some nights and losing weight - but all that is normal.
The step backward - we had a desat last night (two in fact) while I was feeding her. It's been 4 days since her last big desat (which again was when I was feeding her). She's pretty good about swallowing, breathing and sucking, but still has those times when she can't do all three at once.
She's got to master all of this before they'll let her come home.
On Tuesday this week Alice has her last eye test at Children's - she'll be transported in an ambulance - and I'm able to go with her. It's the only test that I haven't seen done on her. It's supposed to be a very quick test, so it will be interesting to watch it in progress.
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