It's hard on the weekends to find the time between Alice visits and Max time, and then there's the social time too, to update the blog. Here's the update for the last few days (all photos were taken today - Sunday):
Friday - great cuddle with no tubes. Better cuddle than Thursday, meaning less dips and she's getting better about breathing while pushing out the toots. The docs are okay with a 2 hour cuddle in the morning as she's doing so well. Alice was starting to route around for food from me and was sucking on my upper chest. These are great signs that she's hungry and wanting to have some breast milk as well.
Saturday - an even better cuddle. Alice had a bath on Friday night with no tubes and she did really well and enjoyed the bath as well. So that's a good sign on how well she is doing without the breathing tubes full-time. There was talk in the cuddle today that Alice may go full steam ahead (after the weekend) with no breathing tubes at all. We'll see. I'm getting the the hospital for the 9:00am feed so that she is in my arms while being fed and she's got the soother in her mouth. Again, started to route around for some food before the food came. Only one dip and she recovered on her own. There is light at the end of the tunnel!
Sunday (today) - and even better cuddle. One big dip (like yesterday) and she recovered on her own. Started doing some routing around before the food came and started filling her tummy. We had a 2 hour cuddle and didn't read in the doctor notes that we could have actually cuddled for 3 hours with no breathing tubes. Was there for rounds and the doctor today decided that she's doing so well we would take away the breathing tubes (CPAP) and see how she does. Called the hospital around 5:00ish to see how she was doing - nurse said she was put on a low flow nasal tube which helps here a teeny bit, but not nearly as much as the CPAP. If she can get along with the low flow or nothing at all, then the move to Lions Gate Hospital will happen fairly soon. Now that Alice is no longer on the CPAP, we can try and start breast feeding (in small stages).
Wow,look at her grow! She's looking great. In no small measure due to the heroic support of her parents! We can't wait to meet her. Love,
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Oh Pat...I can't believe how amazing she is! She has changed soooo much and is even appearing to have baby chub:) Too stinkin cute! I can't wait to meet her!
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